What is respite care?

Often, our families who care for these beautiful heroes need some extra support.  Besides parenting, Moms and Dads often also provide the nursing care their child needs.  This can mean severe lack of sleep as they care for their child's needs overnight, being unable to get babysitters who are qualified to care for their child (which means no breaks), and having the extra emotional weight of constant changes in health, frequent doctor and therapy appointments, and many hospitalizations and surgeries. "Caregiver burnout" can bring on health crises for the parents, financial struggles, and other difficulties within the family structure.

All parents need breaks from time to time, but for families with children with complex health needs, there often is no way for them to get these needed self-care breaks.  This is where Hero's Path can help. 

When needed, our heroes can have respite stays within our beautiful, home-like facility. Trained nurses, aides, and companionship volunteers will provide 24/7 care for the child. Our amenities will allow kids to have memorable, fun activities while their parents care for themselves. The palliative care Interdisciplinary team will monitor the child in the setting of respite, allowing the team to get to know the child outside of the clinic experience.

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The IRS granted us 501.c.3 status!  We're very excited to have that step finished.  We are working on developing partnerships with area health care leaders and organizations.  We are developing our program design.

A donation of $21.75 will provide one day of service to a child with serious illness.  $152.25 will provide a week of service to that child, and $652.50 provides a month of services for that child!  We will save donations until we have enough money to start services in a sustainable way, for at least 150 children!  You can be a hero and partner with us to ensure these services reach the families as soon as possible!

With a recurring monthly donation of $10 or more, or a one-time donation over $100, you can work with our board president to make a commissioned watercolor painting for you.  We're always looking for input!  If you have ideas, would like to give advice for our program, or would like to partner with us, please contact us through our contact page.

© 2020 by HERO'S PATH PALLIATIVE CARE, INC.